This has been quite a week, once again.
Our transition to the hospice was not easy. Almost immediately, we lost all pain and nausea control. The staff there really didn't seem concerned with what was best for Trent. They had their schedules and routines. I had absolutely no trust or confidence in the 'care' they were providing.
Their spiritual care director got involved and the social worker got involved. There were some changes made, but not enough to make me feel comfortable. When Trent voiced his desire to go elsewhere, that made the decision clear. On Tuesday, I had my sister come and sit with Trent for a couple of hours so I could go and see another facility. The difference in setting and philosophy could not have been greater. At the Lodge, they were amazed at some of the questions I asked and horrified that our experiences had made me feel it necessary to ask.
Jackie, the director at The Lodge, is all about getting things done, and - as promised - things were ready to move him within an hour. Trent was, of course, exhausted by the move; and Jackie's first priority was to get him into his bed and comfortable. After that was settled, then we focused on the paperwork. We are back under Methodist Home Hospice - just as we were before Trent was admitted; and that means we are back with the doctors and nurses that are already familiar with Trent. They sent a nurse out right away Tuesday night for a 'tuck-in check' to make sure that we had everything we needed for the night. The intake team came first thing Wednesday morning. Trent's doctor and his new nurse each came on Friday.
Trent has been so much more at ease here, and the pain is much better controlled. The nausea is much better, but not yet where we'd like it to be. Dr. Duane and I talked at length on Friday. We are going to watch closely for a couple more days and then re-evaluate. It feels so good to be working with people again who genuinely have Trent's comfort as their primary concern!
As far as the other facility, the social worker promises that changes will be made and that, as much as she hates what we have been through, our experience will enable them to force some changes that would have otherwise taken longer to make. I hope that is true.
We had a dear friend drive several hours to visit this week. It was a great blessing and encouragement.
There will be changes with the kids this week. My sister has been here staying with them, but she has her own family who miss her and need her. I know the kids will still be well cared for, but I see how all these things are affecting them. So many times, I wish I could be two places at once, but I can't.
Through all of the changes and difficulties, we still feel blessed. God has provided for all of our needs. He encourages us and strengthens us. He guides us and provides us with good counsel. He blesses us with good friends and family - both far and near. He gives us assurance that He is in control, that He has a plan, and that His way is best. He gives his grace for each moment that we face.